Tag Archives: autism awareness

Light It Up Blue 2012

1 Apr

April 2 is World Autism Awareness Day and one of the initiatives that have marked this day is the three year-old Light It Up Blue Movement of Autism Speaks. With new cases of autism being diagnosed everyday and incidence rates now standing at 1 in 88 kids in the US, surely we’ve gone past beyond simple awareness. How many kids will it take for people to start realizing that this will not go away? That beyond feel-good movements and short-term PR projects, we must press our governments, our health officials, and our teachers to work hand-in-hand with families and come up with comprehensive action programs?

Today, we must start moving, There is no time to lose. Our kids are growing fast. Their numbers are rising even faster. Changing labels and diagnostic criteria will not change the reality that this growing segment of the population- and their families- will continue to require assistance, and if such were not possible in view of third world governments’ priorities, then at least some tangible guidance.

In this part of the world, we join the millions of those who love and live with individuals with autism. Our son  may not have his own voice, but he has ours.

We are Team Alphonse.

Boring is Good

1 Sep

I had a busy last two weeks, which was good because I got out of the house more frequently than I have of late. I’ve been feeling cooped up here at home after a cycle of nonstop ring-a-ring-o’-posies with the flu. The down side was that I got too busy to sit down and jot what’s been happening with me and the family. Between the chores still piled up here at home (when, oh, when will I ever finish?), the kids (and for all their size, they are still kids- big, messy ones at that), and the unexpected changes in all our schedules, squeezing in some computer time was next to impossible. You know when something happens and you instantly think, “Wait till till I post this in my blog”? Well, that happened more times than I can count and I never could follow through.

The good news is we’re all okay now. Things are often BORING here at home and I mean it in the best possible sense. After two weeks of whirlwind activities, including some days off in Singapore, boring is an absolutely welcome development for this family- no unexpected changes, no unpredictable shifts, no crazy tilts in our already rollercoaster lives. I am ready for some down time, baby!

I do have stories to tell you of things I’ve seen and done and places I’ve visited in the last two weeks. One of them, I hope, will become part of Alphonse’s new life soon- an absolute gem of a find in the middle of this crowded city, an oasis for children like him. I’m still working out the details, but I hope that Alphonse will be able to get out of the house more often from then on. Wish us luck, please! We’re going to need it.

In the meantime, I will be uploading new pictures and resizing them for use in the next few days’ posts. Thanks for staying tuned, my friends. Will be back again tomorrow!

~0~

My happiness thought of the day:

Happiness is…

a three year-old nephew who screams in delight at the sight of his beloved, albeit disabled, cousin.

“Oh my God! That’s Kuya Alphonse! That’s Kuya Alphonse! I can’t believe it!”

Joseph has not seen Kuya* Alphonse in months since Alphonse got sick. It was my decision to keep him away, mindful that Alphonse may accidentally hurt him; he is so small and delicate still. But he never fails to ask about Alphonse in phone calls, and whenever someone asks him who he loves, he always says “Kuya Alphonse” without hesitation. Their happy reunion last Monday happened at my dad’s 70th birthday dinner.

Love is contagious, but so are fear and prejudice. I am grateful that my brothers and sisters love Alphonse so much that they passed on this same love for Alphonse to their children. Joseph knows Kuya Alphonse is different. Kuya sometimes tramples him underfoot, accidentally. Kuya sometimes refuses to share his bubbles. But Joseph understands, even at a young age, and adores Alphonse without fear, without revulsion, without judgment.

“It is only with the heart that one can see rightly; what is essential is invisible to the eye.”~Antoine de Saint-Exupéry

Wish we could just all love one another this way.

*(Big Brother)

Want Prizes?

8 Nov

Today, I was looking at the entries to the Okasaneko Chronicles’ 3rd Blog Birthday Giveaways and I was very pleased to see the numbers growing. You can still join until November 14. The contest ends one second before midnight of the 15th, so any entry received until 11:59:59 pm of November 14 is still valid.

I noticed, however, that there have been some confusion on where to post and what to post, and since we’re all friends here, let’s just say I ♥ you all and forgive the little mistakes. If you took the time out to visit this blog, write a comment, and leave your well wishes on this blog, as long as you indicate that ”I want to win in Okasaneko Chronicles’ 3rd blog Birthday Giveaway,” you’ve got one entry for the raffle drum.

To make things clearer, however, let me point out some more helpful tips for posting and re-posting.

  1. Comments must be left on the blog entry “Now 16, Forever Sweet.”  
  2. For FB postings, please make sure that your FB status post is viewable and please put the link in the comments box of  “Now 16, Forever Sweet.”
  3. To  blog about the contest, I ask that you link the Official Giveaway Rules and include the picture with our blog giveaways sponsors (see below). You can resize the picture if it’s too big.

I do have pictures to upload now so if you want any of of these prizes, then, join, join, JOIN!!! I hope these whet your appetite to win freebies!

One winner will receive this very helpful Autism Society Philippines Directory of Resources, which lists down all available schools, therapists, and other professionals, for children with autism. This comes with a bright neon green angel baller band, also courtesy of ASP.  (Note: Because this book will be of greatest use to those in the country, raffle of this prize is limited to local readers only.)

Two winners will win a set each of this lovely charm bracelet with enamel autism and puzzle charms, an enamel autism awareness pin, and a “I ♥ someone with autism” badge pin featuring Alphonse’s brother Alex as a cutie ten-month-old doing a kissy face. These are all courtesy of Alphonse (amd Alphonse’s mama!).

And to Sylvanian fans out there, or simply anyone who wants to see what Sylvanian Families are like,

Ban Kee Trading, exclusive distributor of Sylvanian Families in the Philippines, will be giving away these prizes to four lucky winners! Two will receive a box each of  the 25th Anniversary Limited Edition Baby Students and two will each receive a furniture set with a Limited Edition 25th Anniversary Forest Fairy key fob. Absolutely divine!

So, far, we have 12 prizes up for grabs! What are you waiting for? Join, join, JOIN!!!

Now 16, Forever Sweet

3 Nov

Today, Alphonse turns sixteen.

It never ceases to amaze me when I look at him, now almost grown up. He stands three inches taller than me, fits into men’s clothing, and sports a slightly disheveled moustache which matches the smattering of hair in his armpits. Everywhere I look, I no longer see a trace of the baby or the child he once was. All I see is a man.

The truth is, I miss my baby. I miss the sweetness of his breath in the morning. I miss the softness of his unblemished skin. I miss being able to carry  him in the crook of my arm to sing him to sleep.

 I miss the way he fits in the side of my body when he curls up in bed with me.

I miss his chubby cheeks and his round, heavy body. I miss the hibernating porkchop and his pouty lips.

I miss his childlike smile, the one that erases all my fears away. 

But even as I miss those mementoes of his childhood, I marvel at who he has become today. Almost a man, but not quite. Loud, quirky, opinionated, determined. Headstrong and bullish. Sweet and trusting. 

It has been a long journey from then to now. There were many days of pain and heartache, and of grief and despair, but for each one of those miserable days, our lives were blessed a millionfold by what we have learned living with and loving him. Alphonse has taught us patience and tolerance, forgiveness and acceptance, gratitude and surrender. Most of all, he has taught us how to love without hope or thought of reciprocity. We love him because we do, and not because of anything he does to make us love him. It’s as simple as that.

Happy birthday, our dear sweet child, our Alphonse.  Papa, Mama, and Kuya Alex love you so much.

~0~

While on the subject of birthday celebrations, this blog also turns a year older this month. Happy 3rd birthday to Okasaneko Chronicles!

In 2007, when I started blogging, I was lucky to get even just ten people a day to read my blog. Three years later, despite the lack of promotion (I’ve never really been very big at that) and the freedom to express myself, those numbers have multiplied exponentially. In this little corner of the Internet I call Kittymama’s home, I have made many friends. I have also become part of a larger community of people I would never have met were it not for this wonderful experience. Thank you to all those who have come, visited, read, lingered, commented, returned, or even just glanced at the pages of my life. I am humbled by your kindness and love.

The Okasaneko Chronicles’ 3rd Blog Birthday Giveaway starts today so please be sure to leave a comment in this blog post to join. You can read the mechanics here for the full details on the giveaway. Many, many thanks to all those who have helped make this giveaway a reality: Sanrio Gift Gate Philippines, Ban Kee Trading, Inc., BusinessWorld/HerWord.com, Autism Society Philippines, The Fairy Godmother, and Alphie (who is none other than Alphonse, the birthday boy who wishes to share his birthday blessings with his Mama).

 

To Stella, With Love

21 Oct

I found this in my comments box this morning when I logged in to check for messages. I thought Stella deserved a post of her own, so one hand less notwithstanding, I am posting a reply for her. (One easy thing about posts- one can always cut and paste, heehee. :-) )

Stella’s note reads:

hi, got to read your blog when i was surfing for materials on autism. my six year old daughter was diagnosed with ASD when she was four. although, now she talks and reads very well, even advance of her age in her prep class, she has some of the behaviors you have mentioned in this article — she does not want a pony tail hair, or any hair accessories, does not like going to a parlor for a hair cut, prefers soft and cotton clothes….

i would appreciate if you can help me how to join the autism Society of the Philippines. I am basically living in Surigao City, Mindanao, Phils.

stella

Kittymama’s reply:

Dear Stella,

Thank you for visiting my blog. One of the reasons I keep doing this is that it helps me reach other people in my advocacy for autism. If even once in a while, a reader searching for information on autism stumbles into my blog, picks up a few things and is made all the better for it, then all these would have been worth it.

I hope this answers your query on joining the ASP. I’ve long held the belief that “Autism is not a boat for one.” We all need a little helping hand along the way, be it someone to talk to or even someone to ask questions of.  The world can be an open, encouraging place for parents like us looking for answers- if we only learn to ask. I am certainly happy you did.   

mindanao

photo from http://upcat.up.edu.ph/htmls/mindanao.html

 Autism Society Philippines has 37 chapters all over the Philippines. Using this map I found via google search, I’ve highlighted the cities with ASP chapters in green to give all of us an idea of where these can be found in relation to your home city, Surigao City, which is highlighted in yellow. 

Below are the contact information for the different Mindanao chapters of ASP as listed in this ASP page.

CAGAYAN DE ORO CITY
President: Ms. Angie R. Abellanosa
166 Villa de Oro Kauswagan
9000 Cagayan de Oro City
Tel No: (082) 3506288
Mobile No: 0921-5927742
Email: angie_abells@yahoo.com.ph
 
DAVAO CITY
President: Mr. Eric D. Dela Costa
13 Carnation Circle Ladislawa
Garden Village 8000 Davao City
Tel No: (082) 2278420
Fax No: (082) 2279609
Mobile No: 0917-9058739
Email: edc@alsonsproperties.com
Email: aspdavao@yahoo.com
Email: davaeno88@yahoo.com
 
GENERAL SANTOS CITY
Representative: Ms. Mira del Rosario
L5 B6 Pioneer Village, Lagao
9500 General Santos City
Tel No: (Res) (083) 553-1280

Tel No: (Off) (083) 302-6745
Fax No: (083) 380-7297
Mobile No: 0915-5598791
Email: msdrqa@mozcom.com

ILIGAN CITY
President: Mr. Miguel Y. Lasala III
III Cuadro Ocho, Inc.
Que Avenue Extension
9200 Iligan City
Telefax No: (063) 492-3873
Mobile No: 0917-7161254
Email: myl111_888@yahoo.com.ph

ZAMBOANGA CITY
President: Ms. Angeli Parmanand
315 Sta. Maria St.
7000 Zamboanga City
Tel No: (062) 993-1617
Mobile No: 0928-9633670
Email: angelieparmanand@yahoo.com

Hope these help you, Stella. I wish you and your daughter all the best,

♥Kittymama

TOP TEN Reasons To Attend ASP Conference

15 Sep

Top Ten Reasons to Attend Autism Society Philippines’ 11th National Conference on Autism

10 — ASP’s 11th National Conference will be held at theSM malls SMX Convention Center within the SM Mall of Asia Complex, with post-conference workshops at the Sky Dome of SM North EDSA.  As we all know, these sister malls are the largest (SMNE) and second largest (MOA) malls in the Philippines and the third and fourth largest in the world. With Manila Bay by SMX, you can make this a “destination conference.” And if this is your first time to get inside Sky Dome, why not take a leisurely stroll around the Sky Garden in SM North EDSA, too? With autism-friendly malls like these, shopping after learning is divine!

9 — Your conference registration comes with free food from VS&F Catering (I don’t know why, but the words “free” and “food” seem absolutely delicious to me!) VS&Fand it’s bound to be good. Trust me, when it comes to food, I haven’t complained to ASP in any of its recent conferences. When you meet me in person, you’ll know why I am such an authority when it comes to food.

8 — You can have your books autographed. :-)  paradiz books(Una ako sa pila, hehe.) Ms. Paradiz is the author of “Elijah’s Cup” and “The Clever Maids,” both of which are available locally.

 autism-angel-merch7 — You can get a wide variety of books and toys educational materials during conferences. Vendors’ Fair is always something to look forward to for parents and teachers looking for quality teaching materials and aids. Not to mention all those cute conference merch. :-)

6 — When our children perform for us onstage, they always bring the house down. Wouldn’t you want to be part of such a proud moment?

5 — You can take the opportunity to thank and laud ASP Board of Trustees, conference committee and and ASP office angels who work tirelessly year-round on our behalf. It’s also time to vote for ASP’s new set of Board Trustees, so use your ASP membership privileges wisely! 

local experts4 — This is a rare opportunity to see our local autism experts, without the long waiting time. Did it take you a year to see your target doctor, therapist or teacher? Of course, it won’t be an official consult, but you can at least say hi and wave to them in person. And chances are, you’ll get the opportunity to hobnob with them too.

3 — Did we tell you about our foreign guests who are coming from their part of the world to share with us their experiences? Our keynote speakers will share with you years of experience and advocacy. You can’t get any more up-close-and-personal than this.ponkyboat_fullbackground2

2 — Meeting new people and reconnecting with old friends are always enriching experiences. Autism is not merely a diagnosis; it is a community. You can learn a lot through reading and research, but nothing beats real-life understanding.

1 Value for money. In these days of recession and trying to make ends meet, a four-day package for the price of one is definitely worth your money. Two whole conference days and two post-conferences with whole day lectures — amazing! How did ASP make it so affordable?

 

ABB banner

So come and join us on October 25-26 for the 11th National Conference on Autism , and on October 27-28 for the Post-conference lectures . Hurry, you only have two more weeks to avail of early bird rates! Don’t miss a chance of a lifetime!

World Autism Awareness Day

2 Apr

world-autism-day-02April 2 is World Autism Awareness Day and it could not have come soon enough.

In the last year alone, we have read and heard of cases of individuals with autism that have suffered injustices in the hands of a supposedly tolerant and accepting society. Cases such as the child “voted” out of kindergarten classroom, Survivor-style, referring, of course, to the popular reality television series that eliminates its constestants via popular vote; the child kicked off an airplane (and this is no longer an isolated case); the teenager who was turned away by his own church; the eight-year-old girl arrested at school for unruly behavior ; even the 12-year old boy who was tasered by the police. In the last few months alone, two teenage males with severe autism have been arrested for alleged murder. The day when our kids are seen as not only disabled BUT as serious threats to society seems closer each day now. This, despite our best efforts to find help and acceptance in this world for our children.

I have gone past the stage of wanting a cure for my own son and moving on to the point where all I want is acceptance and understanding.  If we could find more compassion in our hearts for those of us who have less in life, for those of us we see as ”disabled” or even “damaged,” then we will go a long way into making awareness more than simply what it is. For to be aware is to be cognizant of truth- that while individuals with autism continuously face many challenges, they are no less human than any one of us. And they, too, deserve their place in the sun.

Gut Reaction

5 Feb

This is a column posted for herword.com last January 27, 2009.

Alphonse, his nanny, my husband, and I were watching cable television early Saturday evening. “Kung Fu Hustle,” dubbed in Filipino, was on, and for lack of anything else interesting to watch in that time block, my channel-surfing fingers finally settled on that movie.

I love “Kung Fu Hustle.” I could watch it over and over again, be it in Filipino, in English, or in English-subtitled Chinese. Stephen Chow’s humor is never lost on me. And so, despite pleas and protests by my husband to simply switch to the original DVD (and save him the excruciating agony of listening to freaky dubbers’ voices), he simply gave in when my hands refused to relinquish the remote control.

We had reached the scene where Axe Gang wannabes Sing (played by Stephen Chow) and Bone (Lam Chi Chung) had stolen an ice cream cone from Fong (Huang Sheng Yi). As he and his chubby friend laughed maniacally, we could not help but join in on the laughter as well. Our amusement turned to stunned silence, however, when Alphonse shrieked and cried out loud. In another split second, he had his nanny by the head, pulling on her hair even as he started to wail inconsolably.

I was nearest to them, probably just two feet away. Nanny held her hair by the roots to prevent more tugging and pulling, and gently, we tried to disengage Alphonse’s fingers from her hair. I held him for awhile, and within minutes, he was calm enough to willingly let her go. Tears streamed down his cheeks as we tried to talk to him.

“Are you angry?” He shakes his head. “No.”

“Are you sad?” Nods “Yes.”

“Are you sad because we were laughing?” “Yes.”

“You thought we were laughing at you?”

Alphonse looked at me from the corner of his eyes, and slowly nodded.

“Oh baby, we were not laughing at you.”

He looked at me doubtfully.

“I’m sorry you thought that we were laughing at you. We love you.” “Yes.”

And with that, a smile slowly returned to his face. He gingerly wiped his tears with his almost man-sized fingers and kissed me, a sloppy and wet-with-tears kiss, which at that moment, felt like heaven.

Over the next two days, we observed two more outbursts coming in at the most unexpected moments. The one nearest to him would invariably be the object of his aggression, and would suffer instant patchy alopecia from his vigorous hair tugging.

We were worried sick. Alphonse has not had an aggressive outburst in months. The last one he had was a perfectly reasonable response to cruelty; we found out that his old tutor would hit his head with plastic toys or even a basketball whenever his attention wandered or when he made a mistake. She would mask this sadism by laughing at Alphonse at the same time, and for a while, even Alphonse laughed with her. After two weeks of this abuse, however, his patience wore thin, and he  became aggressive towards her. We fired her as soon as we found out, which on hindsight, seemed very light a punishment for her cruel behavior.

After this unfortunate episode, Alphonse became more wary of us. Once, when he accidentally spilled his drink on the floor, we were shocked to see him cringe in fear and act as if he was bracing himself for physical punishment. When we consoled him and said that we weren’t going to hurt him, we saw relief etched in his face. We had to work at getting his trust again, and it took a short while, but we did.

Thinking back on these events, we soon discovered a common theme to all three outbursts: Alphonse lashes out when he thinks he is being made fun of and being rejected.

We’ve noticed that he’s been rather sensitive lately. When he gets extremely happy (and we’re thankful that he’s often happy these days), he expresses this joy in very physical ways. Often,  he jumps and hops all over the house, runs in whatever free space is available, flaps his arms excitedly, and even shrieks at the top of his voice. Sometimes, in his excitement, he will run into things inside the house or unintentionally hit people with his flailing arms. He’s almost fully grown now, so the experience of being accidentally swatted is not altogether a benign one. And when people do react (as in the last outburst, when Alex asked his brother to please move away a bit as Alphonse was crowding him as he ate his dinner), Alphonse feels hurt and rejected and would lash out.

I call these his gut reactions, emotions that come from deep inside him and pour forth in torrents. Alphonse responds to the outside world in ways that are often inexplicable, and to feel the entire force of his hurt and pain in such a violent and aggressive way tells me that he is a deeply feeling individual who reacts instinctively.

And Alphonse is not the only one. Just recently, the news of an eight-year-old child with Asperger’s Syndrome being arrested for battery shocked me. Apparently, she had wanted to join in on a school party, but as she refused to remove her cow hoodie, she was forbidden to attend the party. She lashed out in frustration and anger, and ended up being arrested for her behavior.

That an eight-year-old child was arrested is mind boggling, and more so when one considers that she has a disability that limits her ability to respond appropriately within social norms. We need to understand that these children often do feel deeply, but are incapable of channeling these emotions to appropriate expressions, be it in actions or words. To judge them by the same standards as everyone else; that is, one is a brat if one acts out, is severely limiting our understanding of their views of the world.

We often label individuals with autism as “living in their own world,” which necessarily connotes that they do not mind the outside world, engrossed as they are in confines of their experiences. Living with my son and learning from the experience of raising him, however, I have found out that contrary to these long-held beliefs, they — people with autism — do so want to be part of our lives. We just need to help them feel secure and wanted in our world, to feel accepted and not judged, to be protected and loved unconditionally. Perhaps in doing so, they will know that our arms are safe and they need not fear being hurt. Perhaps by doing so, we can actually open their world to us and make them want to stay in ours.

Walk With Angels

16 Jan

autism-angel

Considering the number of kilometers I’ve covered since I started my regimen of walking/running, I feel mighty prepared to tackle this year’s Autism Walk. Last year, I was huffing and puffing in the morning sun, flushed pink from running and taking pictures at the same time. I had to pause and catch my breath more than a few times, which only goes to show the very poor state of fitness that I was in last year.

Unfortunately, despite all my preparations, I will not be able to join this year’s Autism Walk. Just a case of poor scheduling, (and yes, some midlife memory crisis) but I inadvertently scheduled another thing on the very day the walk was slated. (*hits head with a brick* ~ do not try this at home!) While I am sorry to miss the excitement of the day, I am even sorrier that I would have to shelve my new shirt ideas for this year. Still,  Team Alphonse may not be around physically, but my family and I (and all those who are invested in Alphonse) will be there in spirit.

If you know anyone with autism, if you live with and love anyone who has autism, if you teach or work with someone with autism, please stand up and be counted. Walk for them. This walk is all about numbers and how we, as a united force, can bring about change for our children and loved ones’ lives.

autism-angel-merchAnd oops, a shameless plug for Autism Society Philippines: (pictures borrowed from ASP newsletter) Autism Walk merchandise (official green ASP t-shirts and baller bands) are available at the ASP office (call 926-6941). When you purchase any of these items, you enable the ASP to work another day and reach more people.

To ASP, and to my friends in the autism community, I wish you mild sun and cool winds on Sunday, and lots of kind hearts to brighten the day. God bless!

Affirmation of Respect

11 Apr

Before we are able to love anyone else, even our children, we must love ourselves. To love ourselves, we must believe that we are worthy of respect. Some days, it’ll be hard to believe even this, when we are overwhelmed and tired and dispossessed of all good humor. There’ll be days you will have to butt heads with others, be it on something as important as your child’s IEP or something as petty as fashion choices. Sometimes, it’ll be easier to fold the hand dealt to us or accept others’ critical views without comment than risk the displeasure of others. But if you remember that our children’s self-esteem springs from our own, then the impetus to demand and hold respect becomes even more necessary.

Respect is a two-way street. Just as we give out respect, expect it back in turn. Never sell yourself short.

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